ONLINE SUPPORT GROUPS

Most, if not all of the following groups will require you to apply for membership to them - this greatly reduces the amount of spam that will come through to you

Legg Perthes Support Group - you will find answers, support, encouragement and friends here, all of whom either had Perthes or have a child with Perthes

Information-Perthes - is open to all parents of children diagnosed with Legg Calve Perthes.  Discussions, suggestions and support offered

Adult Perthes Survivors - this group is specifically aimed at adults who had Perthes as children and are now experiencing health issues either directly or indirectly attributable to either Perthes or the treatments received

Surface Hippy  - is for sharing information and experiences among patients who have had hip resurfacing surgery

Although I have these groups listed, I will not endorse one over another and the choice of whether or not to join a support group, and then which one to choose, is entirely up to the individual

LINKS TO ALTERNATIVE TREATMENT OPTIONS

Please follow the links to websites offering information on alternative treatment options that may be of benefit

Bowen Therapy -  is a holistic, gentle, effective, non-invasive muscle and connective tissue therapy that stimulates the bodys own natural resources to heal itself.  The practitioner delivers signals to the nervous system at specific locations (on muscles, tendons, ligaments, or nerves), and the body does the rest.  

For a New Zealand site go to Bowen Therapy NZ

 

LINKS TO ONLINE INFORMATION

Please follow the  links to information that may be relevant to you

DIAGNOSIS OF PERTHES DISEASE:

Detailed medical information about Perthes Disease or here.  With xray images of Perthes hip.  With good explanation of classifications

Brochure giving outline of Perthes

Brochure suitable for teachers about Perthes

Straightforward information about Perthes

Incidence of Perthes (UK)- Survey results, also Survey by Dr Lopes & UK Perthes groups

Diagnosis under 5 doesn't guarantee good outcome

Genetic risk factors for Perthes Disease

Morphological changes in the acetabulum in Perthes disease

NON-SURGICAL OPTIONS FOR CHILDREN:

The weight-bearing abduction brace for the treatment of Legg-Perthes disease

SURGICAL OPTIONS FOR CHILDREN:

Comparison of triple osteotomy and shelf augmentation

Good description of various osteotomies

A comparison of the Biomechanical effects of opening and closing wedge varus osteotomies in Perthes disease

The external fixator description and basic information

ADOLESCENCE POST PERTHES:

Hip pain during adolescence after Perthes disease

Clicking hip (snapping hip syndrome) causes, diagnosis and treatment

ADULTHOOD POST PERTHES:

Perthes' disease: A study of constitutional aspects in adulthood 

The adult hip after femoral varus osteotomy in patients with unilateral Perthes disease

Long term results of centralising intertrochanteric (valgus) osteotomy  

Long-term results of derotational femoral varus osteotomy in Perthes disease: 26 year follow up 

Subtrochanteric (valgus) osteotomy in the treatment of Perthes disease

Reconstruction of Residual Deformities of the Hip 

Conservative Hip Solutions - alternative to resurfacing or replacement of hip

A new surgical option; new treatment options for Perthes

Hip resurfacing surgical options

ADDITIONAL INFORMATION:

Cast care information; petrie cast care; hip spica cast care

Easy access clothing - great over casts & fixators

Development of the hip in Multiple Epiphyseal Dysplasia

Glucosamine trials information or here

New free study of therapy of osteonecrosis of the hip with low molecular weight heparin

LEGAL PROTECTION REGARDING EDUCATION:

Legal requirements regarding access to buildings, education, employment, social security, family life and personal integrity, culture, recreation and sport and religion in New Zealand for people with disabilities (NZ)

Overview of The Code of Health and Disability Services Consumers' Rights (NZ) and the clauses in this regulation

The rights of New Zealand children and young people (NZ)

CCS Disability Action - Supporting you and your family (NZ)

Related Services for school aged children with disabilities (USA) 

Protecting Students with Disabilities (USA) 

The Civil Rights of Students with Hidden Disabilities Under Section 504 of the Rehabilitation Act of 1973 (USA)

Education of children and youth with special needs

MISCELLANEOUS:

In case you are interested, Perthes appears to have been around for a very long time, as per this image of a femur from an archeological dig in Nosterfield Quarry, North Yorkshire, UK

If you wish to read the article this image comes from, please go to Nosterfield-Osteology Assessment